Superficial Siderosis New Zealand

Superficial siderosis (SS) of the central nervous system is a rare brain disorder resulting from chronic, and repeated, slow haemorrhaging into the subarachnoid space, and if accurate international figures were obtainable, would most certainly prove to be evenly spread amongst all nations around the world – the small country of New Zealand does appear to have more than its fair share of diagnosed survivors however. People diagnosed with SS range in age from just a couple of years old, right through to their 80s, though the most common age bracket is the 50s and 60s.

Dave Hill of Oamaru, diagnosed with SS in 2004 at the age of 52, operates a weblog and as a result of huge interest from survivors around the globe, he formed an international support group with currently more than 80 members in Belgium, Italy, Scotland, Ireland, England, USA, Canada, Central America, South Africa, Australia and New Zealand. A monthly newsletter is published on the blog and serves to assistance members as they battle with the daily distractions thrown at them by the disease. The group also carries out surveys amongst the membership which are made available to world-wide research scientists.

URL:

Address:

Mr Dave Hill

9 O.R.D., Oamaru, 9495
 

Freephone:

Phone:

Fax:

Email: